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Why does god give children leprosy?

Sister Catherine, a nun working at the home for girls with the disease finds herself asking when plagued with doubts. Recently read
Molokai by Alan Brennert. It is the story of Rachel from Honolulu who contracts leprosy in the late 1800s and is packed off to the island of Molokai where the government has set up an isolation settlement called the Kaluapapa. I started reading it on my way back from DC on the train. I had just had a wonderful time with family, hogged on the thanksgiving turkey, with an Indian flavour and was heading back to home to Boston. I tried reading a few pages and soon I was embarrassing myself with tears streaming down. I had to stop reading. Rachel, then six years old erupts in a pink coloured rash on her thigh which has lost all sensation. She is transferred to the quarantine testing facility in the city. Her parents deposit her there and she cannot understand why they are abandoning here here alone. I recovered for a while and picked up where I left off. Only to have Rachel shipped off to Molokai for ever and she lands on island full of grotesquely deformed people, all alone and had to stop reading all over again. I abandoned it for the rest of the journey. But then it only gets better from there.

Rachel grows up...... adults and pain, we can deal with. Only as Sister Catherine asks, why does god give children leprosy. She later decides that what god gave us was the spirit to endure leprosy, to discover antibiotics, and make miracles as were happening in the world of technology and science in early 20th century (not sure how much I subscribe to that view). The inhabitants of Kaluapapa are far removed from all these miracles, they only hear about it and see it years later when it slowly finds its way to Molokai, electric lights, moving pictures.... They do see the smoke rising from Pearl Harbour when it gets bombed but otherwise their life runs in a parallel world. They live, love, get ravaged by disease and die there, in their mini universe. If babies are born, by accident in all this activity, they get shipped off to the outside world to prevent the spread of the disease eventually. Thus Rachel too has to give up her child Ruth, if she is to survive.

Rachel is the spirit that outlives all her contemporaries, her friends, her aunt and uncle, her husband..... She lives to see the arrival of the antibiotics. She lives to leave the island, when it is becomes finally possible to do so. And the last chapters are all happy and gay, so much so that you begin to find it not in the spirit of the whole book.

Reading about it I was reminded of my childhood in Delhi, where I remember seeing lepers, with their hands and face eaten away by the bacteria, ill-concealed by swathes of bandanges begging in the streets. I remember seeing the 'leper colony' built by Laurie Baker. I began to wonder, and am still wondering why in the 1980s and probably even today we have so many people with such late stages of the disease and why they are living in a 'leper colony' albeit in the middle of the city, but nonetheless shunned by ignorant people like us.

Image by aishahillbilly from Pixabay 

Comments

Unknown said…
I know. Not every one is as blessed as I am.
I never understood. My mom almost became hysteric when I uttered the name of the medicine that I took. She told me never to name the medicine. I was a kid. She didn't want others to know.
Mom and Dad were unusually quiet.
She knew it from the ads on the TV. the dermatologist sent me out and confirmed what she feared was true. what's all the fuss about this little pale patch on my left elbow.
I had no clue.

After many years, I googled and found out that Rimactane is Rifampicin, an antibitiotic against Mycobacterium.

The next time we met I told my mom that I knew that I had leprosy infection. It was a dramatic moment. I realized that she was protecting me. The knowledge could have affected me psychologically.

I also learned how others behaved when my mom gave the news from dermatologist to my relatives.
One aunt spread fear among other relatives that I could spread the disease.I pity her. She didn't know fear is the worst disease.

My grandpa gave me a bath with the soap that he uses. To prove the point to those stricken by fear.

It's painful to see. Ignorance and stigma do more damage than any disease. Be it leprosy or AIDS.

I hope I'll hear in my life time that leprosy has been wiped out.
That the bacterium exists only in labs.The same for HIV.

I know. Hoping for ignorance to be wiped out is naive.
Ram
ChetanaX said…
Yes, I too have a similar episode in my memory. When my vitiligo spots started appearing, doctors suspected leprosy. I remember various doctors pushing pins and stuff into my skin to see if I feel pain. I did and reacted appropriately, so that ended there. I never thought or even realized what the opposite result would have been like.
Yes it is still there at the very same place, in R K Puram, the leper colony. It is there in almost every town and city. It is there before every temple and church and mosque. Why, we who may not be frequenting temples see it every day at the road crossings while we wait for signal. The green signal comes and we pass. They wait. They have been waiting for years, in spite of Gandhi, Baba Ampte and the government's leprosy eradication programme.

The sense of guilt had visited me every time I passed that colony on my way to office. I should have been there doing something. but I didn't do anything and instead found satisfaction in blackening the whites in paper...
anand

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